Alyse Marieta - 7/18/13-8/1/13

Today around 1:00 p.m. our little fighter lost the fight. Alyse Marieta is now with her brother, Elijah and Grandpa Dana.

Thank you to everyone who has offered us their prayers and support.

Two Weeks Old

Today Alyse is two weeks old.  Things look so much different than they did a week ago today, when I started this blog.

The last two times they've tried to draw blood from Alyse's heal, they have been unable to get enough to run labs.  Her profusion is so bad that there isn't enough blood flow to her feet to get any out.  Because of this, they cannot check where her levels are, so they have to just leave her on the same meds as before.

Still no wet diaper.

Her stats are holding steady right now.  We had another slight episode with her oxygen levels dropping last night, but they suctioned her, got some junk out, and she stabilized.

While I was resting last night, Joey talked to a doctor and to a nurse practitioner.  The doctor told him that our baby is dying.  She said that Alyse could still get better, but that more than likely she would not.  The nurse practitioner told him that at some point we may have to make a decision to take her off some of her support so that we can hold her... Something that we haven't been able to do at this point.

So, please pray for her & us as we go through this.  Pray for her doctors to make the right decisions with her care.